A Community of Insight, A Future of Hope
The Oncology Patient Empowerment Network (OPEN) was founded with a single mission: to provide every cancer patient with the most up-to-date and unbiased information on cancer treatments and resources. While doctors offices and pharmaceutical companies are incentivized to promote treatments they offer, OPEN goes directly to patients to compare hundreds of treatments administered at thousands of institutions to identify those with the best outcomes and smallest side effects. This is achieved by connecting cancer patients in a community to help them learn from the experience of other patients to help avoid poor outcomes others have experienced and share in the victories others have enjoyed. Driven by the experiences of cancer survivors, OPEN provides a free resource for patients to access and share real-world data on treatment efficacy, safety, and quality of life while ensuring the highest levels of data privacy and security.
Informed Decisions Through Shared Experiences.
Patients often face uncertainty about how effective a new treatment is likely to be, how effective a hospital’s team is at administering it, and how the treatment has affected the quality of life of other patients. Even for drugs which have been studied for years, published data is frequently woefully insufficient to offer patients a complete picture of how different treatments are likely to compare. OPEN addresses this information gap by connecting patients to anonymously share their experiences. Lessons learned from the journeys of thousands of patients are combined to provide the OPEN community with powerful insights on which emerging treatments were harsh and ineffective, and which showed miraculous results with minimal side effects.
Join OPEN Today
Every cancer patient is invited to join the OPEN network by selecting the “Join Now” button above. As part of the OPEN community, members are asked to complete a brief survey about their treatment journey, providing their contribution to an ever growing patient-informed dataset. Survey data is collected and stored anonymously without reference to any personal information. Data is then aggregated as a communal resource, providing other patients within the network invaluable insights on emerging treatment methods. When enough data is available, each contribution is analyzed by OPEN’s team of statisticians to create clear, easy-to-understand summaries, which can serve as invaluable resource for others facing similar choices. As members of the OPEN community, patients gain free access to treatment summaries as well as data rendered to simplify the comparison of different treatment options. Please join us in working together to share the lessons from our own treatment journeys to help guide others to find the best possible treatment for this horrible disease.
